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Alfie Dingley

Netherlands To Supply Medical Cannabis Until July Despite Brexit Ban

The mother of a nine-year-old boy with a severe and rare form of epilepsy who was told Brexit would end the supply of a life-changing cannabis medicine that saved her son’s life has been given a six-month reprieve. Hannah Deacon said she was hugely gra…

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The mother of a nine-year-old boy with a severe and rare form of epilepsy who was told Brexit would end the supply of a life-changing cannabis medicine that saved her son’s life has been given a six-month reprieve. Hannah Deacon said she was hugely grateful after being given the lifeline by the Dutch government, which has sanctioned continued supply of the medicines despite a Brexit ban on fulfilling prescriptions from the UK. She received a…

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Alfie Dingley

Mother Fears Son Could Die As Brexit Stops Medical Cannabis Supply

Government gives two weeks notice that access to epilepsy treatment for nine-year-old Alfie Dingley will end. The mother of a nine-year-old boy with a rare and severe form of epilepsy has told how she fears her son could die after the government announ…

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Government gives two weeks notice that access to epilepsy treatment for nine-year-old Alfie Dingley will end. The mother of a nine-year-old boy with a rare and severe form of epilepsy has told how she fears her son could die after the government announced his supply of a life-changing cannabis medicine from the Netherlands would stop because of Brexit. Hannah Deacon was given just two weeks notice by the Department of Health and Social Care (DHSC)…

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Cannabis Saved My Son’s Life

I used to dream of being a normal mother. I would see other mums dropping their kids off at school, waving them goodbye and I’d want to be them. Not the parent with a chronically ill child. For years, this scenario felt unattainable, but since my son A…

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I used to dream of being a normal mother. I would see other mums dropping their kids off at school, waving them goodbye and I’d want to be them. Not the parent with a chronically ill child. For years, this scenario felt unattainable, but since my son Alfie Dingley became the first patient in the UK to receive a permanent cannabis licence, our family has been given hope. There’s a lot of fear around the…

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Alfie Dingley

One Year On And U.K. Medical Cannabis Regime Is Failing

One year on from the introduction of medical cannabis in the U.K., the overwhelming consensus is that it has been a massive failure in need of a complete overhaul. As things stand there is little chance of this coming from within the U.K. medical establishment so the change will need to come from elsewhere. Steve […]

The post One Year On And U.K. Medical Cannabis Regime Is Failing appeared first on CBD Testers.

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One year on from the introduction of medical cannabis in the U.K., the overwhelming consensus is that it has been a massive failure in need of a complete overhaul.

As things stand there is little chance of this coming from within the U.K. medical establishment so the change will need to come from elsewhere. Steve Moore, Founder and Director of the Centre For Medicinal Cannabis, described the situation as following:

“The NHS implacably opposed to making it easy to get access to cannabis medicine in the U.K. So, we need a political decision, we need more politics. In other jurisdictions exceptions have been made, and the exceptionality of cannabis has been recognized. We need to get government to recognize this and allow the optics of industry to improve.”


Mass Resignations

Also speaking the Cannabis Investors Forum in London last week was leading U.K. medical cannabis expert Prof Mike Barnes, who helped establish the Academy of Medical Cannabis and The Medical Cannabis Clinicians Society.

He says those responsible for current impasse – mainly the prescribing body NICE (The National Institute for Health and Care Excellence) – ‘need to resign en masse’.

Canadian Dr Dani Gordon, is Vice Chair of The Medical Cannabis Clinicians society, and now practises in the U.K. She described the NICE guidelines as ‘incredibly negative’, saying the current fixation with double-blind placebo controlled trials fails to accommodate the complexities of cannabis medicine.

Vernacular Medicine

“We need to also consider well-done, observational data. We have access to to the experiences of thousands doctors in two continents and we should not be fixated on the traditional drug development funnel,” she said.

To date just a couple of NHS prescriptions have been made with hundreds of patients having to pay for their own medicines prescribed through private clinics. Hannah Deacon’s epileptic son Alfie Dingley is one of the only two patients in the U.K currently in receipt of an NHS prescription for cannabis medicine.

“Patients are being blocked at very stage by bureaucracy and this needs, needs sorting urgently,” she said.

Legal experts have also expressed they frustrations at the inability of the U.K Home Office to ensure more cannabis licences are issued to support the growing CBD and medical cannabis industries. Nick Davies, CEO of London law for Memery Crystal, described how he has 20 clients seeking growing licences with progress on these being glacially slow.

Do you agree that the medical cannabis in the UK is a failure?
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The post One Year On And U.K. Medical Cannabis Regime Is Failing appeared first on CBD Testers.

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